Friday, January 7, 2011

Hello again. :)

So, it's been a while since either of us has posted here! What with all of the various holidays, webpage adjustments, and life happenings... well, it's been a little busy. But, Happy New Year! Time to start prioritizing, and working on new things.

For those of you who know me in person, you know that my son was born with a defect of his left ear called Microtia-Atresia. For those who don't know us, then I'll explain just a little bit about it. Basically, his ear didn't form all of the way. So, while he has an inner ear, an ear drum, and even a little bit of a folded up ear on the outside... he's missing all of the parts in between. Since his right ear works perfectly fine, this isn't a completely end-of-the-world type disability.... but it does have its problems (like unilateral hearing loss, for one. haha). I don't like to go on and on about it and my son functions as if it doesn't even exist. Of course... he's only 4, so he hasn't quite gotten to the mean teasing stage found in most schools.

So, long story short, I read a publication that I get through the mail every month called "Hands and Voices Communicator". It's kind of a little newsletter for members of the Deaf and Hard of Hearing community in my area. It's cool... but usually there's not a lot in there that applies to me and my family. This month though, there happened to be a cool little article about Microtia-Atresia, and falling through the medical "cracks". Yes! Finally, connection! Someone else, in WRITING, actively talking about it! AND she had a Facebook group! Yes! So I joined, and was immediately welcomed, and given advice... and have tons and tons of articles to read through just waiting for me in the group... all within the first 24 hours. Awesome. :)

By now, I'm sure you're wondering why I'm telling you all of this (other than: Just because I can! muaha!). Well, that's the cool part. There's a lady in the group that is selling Swarovski Crystal support bracelets in order to make money to adopt a child who has Microtia-Atresia. (If I could find her info, I'd give it to you... if anyone knows her info... let me know!!!) She has a GREAT cause... and if I had money to send her, I would totally do it.

However.... this got me to thinking. While MA is not exactly a Common birth defect... it IS known. And there's only the one single lady out there making support/awareness jewelry for it... and I can't even FIND her outside of a couple people mentioning her goods. There's no color code, there's no ribbon, there's not even a recognized symbol for the disorder (other than the ear, since that is what is most often affected)! So, now I want to make some. I don't wear bracelets, and I rarely wear necklaces (I'm a tshirt and jeans kind of girl. Most of my jewelry doesn't go well with that kind of wardrobe. :)) But this one? Yeah....

This one I'd wear.

Interested in joining the group? See: Microtia-and-Atresia-Support-Group

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